The other day a message was posted on the Kiss From A Rose website. It was from a mum, who's seventeen year old daughter is in the middle of treatment for a tumour found in her groin. In her message, she explained the beginning of their journey and an all too familiar account of repeatedly visiting her GP and local hospital, trying to get them to recognise the pain her daughter was in, waiting too long for a diagnosis.
Why is it that when it comes to teenagers, so many medics turn a blind eye? I just don't understand it. Here was a girl with physical symptoms - a lump growing at the side of her groin, and she was told it was a bruise by medical professionals. Much like my mum who was told to take me a psychologist when I persisted with visits to A&E 10 years ago at the beginning of my journey, her mum was told to stop reading so many Women's Magazine's when she challenged the 'expert's' opinion. It absolutely infuriates me, and I worry about the apparent lack of progress and recognition of teen cancer by doctors still, an entire decade later.
Why would a young girl who otherwise could be out with friends and enjoying life, insist on returning to A&E nearly every week, if there wasn't something wrong? I'm sure that doctors very often come across people who over react and panic unnecessarily over their health, and NHS funding is limited, we can't be handing out scans and X-Rays to everyone who comes along complaining of an ache or a pain. But there must be some way of ensuring that if a patient visits a hospital complaining of the same pain in the same place, maybe five times for example, then they are automatically given a scan, just to be safe. How is that in some cases we can afford to award breast implants and other cosmetic procedures on the NHS to people who feel it would improve their way of life, but we are so reluctant to spend money on what seems to be a forgotten generation? Have teenagers earned such a bad reputation that they deserve to be ignored?
Kiss From A Rose accounts my frustration at having to wait nearly two years to be diagnosed, it was nearly two years of absolute hell, trying to get someone to listen to me, trying to get someone to help me. It was very nearly too late for me, and it broke my heart when I met others on my ward who were diagnosed too late. Perhaps they were waiting too long to be heard... perhaps they could have been saved... perhaps it would have taken just one scan when they first realised something could be very wrong... perhaps?
I hope that by talking about my story and others' we finally break through the arrogance and ignorance of some doctors, it needs to be recognised that we know our own bodies, no matter what age we are. When it comes to being diagnosed and giving yourself a chance to beat it, surely it goes without saying, Cancer Waits For No One.
Welcome To My World, Won't You Come On In....
I hope you find my blog interesting, helpful and comforting. Whether you are going through cancer treatment yourself, or know someone close to you who is fighting, I hope it provides a little insight into my journey that may help you along your way.
I have recently written a book about my experience of being diagnosed with cancer at just 16. Eleven years on, "Kiss From A Rose" reflects on the sadness, fear and frustration I felt after being diagnosed, and my fight throughout the subsequent treatment. Since that awful day in the summer of 2001 I have been diagnosed a further six times. The book describes four of these hurdles, but I began this blog as I faced my biggest battle yet having just been diagnosed for the sixth time.
Read how I overcame a death sentence, and after receiving a prognosis of just one year at the begining of 2011, am now looking foward to a long, happy and healthy(ish) life!
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http://www.kissfromarose.co.uk/
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